Here is a list of some great ALS organizations.  If your 501(c)3 isn't listed, please let us know so we can add them!

Nationwide Organizations
  • ALS TDI: The first nonprofit biotech lab focused solely on ALS. 

  • CCALS:  Provides resources includking equipment, educational workshops, Medicare/Medicaid assistance, guidance and awareness in living with ALS, caregiving, and end of life issues.

  • Hope Loves Company: Provides free camps for kids who's parents or grandparents have or had ALS. 

  • HARK-ALS:  Provides assistance to alleviate the financial burdens faced by families battling ALS. 

  • Team Drea Foundation: Supports bold, innovative research to find a cure or effective treatments for ALS.

  • I Am ALS: A patient-led, patient centric community that reshapes public understanding of this disease, provides key resources to the community, and creates opportunities for patients to lead the fight against ALS and searce for a cure.

  • ALS ONE:  A partnership of world-leading ALS researchers, doctors, and care practitioners focused on finding treatments for ALS and novel approaches to improve care for those battling the disease now.

  • Augie's Quest:  One Goal: To find a cure for ALS in our lifetime.

  • Team Gleason: Provides adventures, technology, equipment and care services to pALS

  • Mary Beth Benison Foundation:  Provides financial assistance to ALS patients and families. In addition, we provide financial assistance to people with cancer and other serious illnesses.

  • ALS Hope Foundation:  The three pillars of the ALS Hope Foundation’s mission are Care, Education and Research.

  • A Life Story Foundation:  Their mission is to raise awareness, innovate and implement new education and outreach programs, and create action to discover effective treatments, and ultimately a cure for ALS.

  • Peter Frates Family Foundation: Very little of the Ice Bucket money went to families, so the Frates Family Foundation was set up to support tens of thousands of patients living with ALS today.

  • Robert Packard Center for ALS Research:  To fund and support ALS research around the world.

State or Local Organizations
  • ALS In Wonderland Foundation: Creating awareness and provides funds directly for the benefit of pALS in the state of Arkansas.

  • ALSWarriors:  Helping ALS families in Utah.

  • Jeramey's Journey:  To build a fully handicap accessible home and to provide this home to a family fighting ALS totally free in Kentucky.

  • Matt's Place Foundations:  Rasing funds to help pALS in North Idaho & Eastern Washington by providing a safe and SMART homes for local ALS families.

  • Quinn for the Win: Pat Quinn's supports the best and brightest in ALS reseach,

  • Any of the local chapters of the ALS Association.  Works with ALS patients with loaner devices.

  • Houston Methodist ALS Fund with Dr. Appel: Committed to the pursuit of excellence in research, education and patient care.

  • More to come...

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